This video explains what Pheochromocytoma is. https://youtu.be/d1r1Ui6cDBo nvacp11
Are you often tired and lifeless without obvious reason? Do you often feel overwhelmed by the hustle and bustle of everyday life? Do you feel an urgent need for salty or sweet snacks? Do you struggle to get out of bed? Can you not make it through the day without coffee? If you live with … Continue reading Adrenal burnout? – Henri Timmers
Quite often, neither healthcare practitioners nor the patients know enough about adrenal gland disorders and their treatment. This can lead to serious health risks. The Quality of Care Standard for Adrenal Disorders is intended to help change this situation. Patients played a leading role in drawing up the document that was officially listed in the … Continue reading Quality of Care Standard supports healthcare practitioners and patients alike
This video explains in a simple way what exactly adrenal insufficiency is.
A women’s journey through Cushing’s disease. Made possible thanks to HRA Pharma, Paris. German and Italian versions to come.
Interview by Dr. Marten Dooper Last year, BijnierNET (AdrenalNET) published the draft version of a national consensus for administering extra hydrocortisone as a way of preventing an Addison crisis in patients with adrenal insufficiency. This ‘stress instruction’ forms part of the Quality of Care Standard for adrenal gland disorders, the first draft of which is … Continue reading Consensus on stress instruction for glucocorticoid suppletion
Jan Smit – 24 november 2016 The materialistic approach to health and illness has brought medicine some spectacular revolutions, but it has also led to ‘solutions’ that bring people no benefit. A rediscovery of the meaning of health and illness could lead to more meaningful care for both patients and healthcare providers. Right through to … Continue reading Blog: From patient to person – Jan Smit
AdrenalNET made accessible the well known (English) AdrenalNET animations in Turkish en Arabic. Usefull when on holiday or for your Turkish or Arabic family and friends: adrenals.eu/tr/video/ (Turkish) adrenals.eu/ar/video/ (Arabic) AdrenalNET and its partners and sponsors like the Dutch Health insurance Zilveren Kruis hope that this information about adrenal disease reaches new target groups and will improve treatment and diagnosis. Call for assistance: Are … Continue reading Adrenals.eu animation made accessible in Arabic en Turkish
During the Medical Conference held on Saturday 25 June 2016, the Dutch Adrenal Society NVACP [Bijniervereniging] honoured two members – Alida Noordzij and Johan G. Beun – by granting them honorary membership. Johan Beun was answering a wide variety of questions from participants at the Conference. He was on form, and was explaining about all … Continue reading Going all out for adrenal patients
BijnierNET: successful campaign in response to patients’ wishes There is specially customised medication available for people with an adrenal disorder who are dependent on hydrocortisone. In the Netherlands, the preparation of this customised medication is the domain of specialised compounding pharmacies. In 2015, BijnierNET (AdrenalNET) held several meetings with a number of the larger compounding … Continue reading Improved medication safety
The video on the Hypothalamic-Pituitary-Adrenal axis (HPA Axis) code: NVACP10
This animated clip – aimed at children aged 12 and over who attend secondary school – explains what CAH is. The clip first explains where the adrenal glands are located, just above the kidneys. This is followed by an explanation of the function of the adrenal glands, the hormones that are produced, and what happens … Continue reading What is congenital adrenal hyperplasia (CAH)? (12+)
What should you do if an Addison crisis threatens? How do you prepare an emergency injection and how do you administer it? If you have a gastro-intestinal infection, accompanied by diarrhoea and vomiting, there is a big risk of an Addison crisis. Always discuss with your specialist what you have done and what else needs … Continue reading How an Emergency Injection works!
Short animation on Addison crisis for adults code: NVACP06 https://www.youtube.com/watch?v=yfK3L2FYPYM
This animated clip explains that some children stay smaller than average because their bodies don’t produce enough growth hormone. If the doctor can’t actually see any reason for this, tests have to be carried out in the hospital. And if your body isn’t producing any growth hormone itself, you have to have an injection in … Continue reading Growth hormone explained! (8+)
The pituitary gland produces the hormones that pass instructions on to many of the body’s major organs such as the liver, the sex organs, the kidneys, the adrenal glands and the thyroid. The pituitary sends a signal hormone out to the organ to get it working. If the adrenal glands work too hard, less signal … Continue reading The pituitary gland explained!
This animated clip explains, in simple words, that the adrenal glands of a child who has CAH are ‘sick’. These children don’t produce enough of the hormone that provides energy, so they have to take ‘cortisol’ in the form of a pill. When exciting or stressful things happen, or the child becomes ill, he or … Continue reading What is congenital adrenal hyperplasia (CAH)? (4+)
This animated clip provides support and advice for the carers of a patient with an adrenal gland disorder. Who might be a carer for an Addison patient? Actually, anyone who is close to the patient: the partner, children, neighbours, friends, family members, colleagues. What do you need to know about an Addison crisis: you should … Continue reading What can carers do?
This animated clip explains what an Addison crisis is and how it can come about. Because of fever, stress, vomiting or diarrhoea, for example, or when you need to have an operation. If you need an operation or other medical treatment, you should always explain to the doctor or anaesthetist that you need to have … Continue reading What is an Addison Crisis? (4+)
Adrenals.eu aims to give information on Adrenal Glands related subjects in multiple languages. It is a new initiative of BijnierNET Read more about it.