All posts by marnixbras

Quality of Care Standard supports healthcare practitioners and patients alike

Quite often, neither healthcare practitioners nor the patients know enough about adrenal gland disorders and their treatment. This can lead to serious health risks. The Quality of Care Standard for Adrenal Disorders is intended to help change this situation. Patients played a leading role in drawing up the document that was officially listed in the … Continue reading Quality of Care Standard supports healthcare practitioners and patients alike

Consensus on stress instruction for glucocorticoid suppletion

Prof. dr. A.R.M.M. Hermus

Interview by Dr. Marten Dooper Last year, BijnierNET (AdrenalNET) published the draft version of a national consensus for administering extra hydrocortisone as a way of preventing an Addison crisis in patients with adrenal insufficiency. This ‘stress instruction’ forms part of the Quality of Care Standard for adrenal gland disorders, the first draft of which is … Continue reading Consensus on stress instruction for glucocorticoid suppletion

Blog: From patient to person – Jan Smit

Jan Smit – 24 november  2016 The materialistic approach to health and illness has brought medicine some spectacular revolutions, but it has also led to ‘solutions’ that bring people no benefit. A rediscovery of the meaning of health and illness could lead to more meaningful care for both patients and healthcare providers. Right through to … Continue reading Blog: From patient to person – Jan Smit

Adrenals.eu animation made accessible in Arabic en Turkish

AdrenalNET made accessible the well known (English) AdrenalNET animations   in Turkish en Arabic. Usefull when on holiday or for your Turkish or Arabic family and friends: adrenals.eu/tr/video/ (Turkish) adrenals.eu/ar/video/ (Arabic) AdrenalNET and its partners and sponsors like the Dutch Health insurance Zilveren Kruis hope that this information about adrenal disease reaches new target groups and will improve treatment and diagnosis. Call for assistance: Are … Continue reading Adrenals.eu animation made accessible in Arabic en Turkish

Improved medication safety

BijnierNET: successful campaign in response to patients’ wishes There is specially customised medication available for people with an adrenal disorder who are dependent on hydrocortisone. In the Netherlands, the preparation of this customised medication is the domain of specialised compounding pharmacies. In 2015, BijnierNET (AdrenalNET) held several meetings with a number of the larger compounding … Continue reading Improved medication safety

What is congenital adrenal hyperplasia (CAH)? (12+)

This animated clip – aimed at children aged 12 and over who attend secondary school – explains what CAH is. The clip first explains where the adrenal glands are located, just above the kidneys. This is followed by an explanation of the function of the adrenal glands, the hormones that are produced, and what happens … Continue reading What is congenital adrenal hyperplasia (CAH)? (12+)

What is congenital adrenal hyperplasia (CAH)? (4+)

This animated clip explains, in simple words, that the adrenal glands of a child who has CAH are ‘sick’. These children don’t produce enough of the hormone that provides energy, so they have to take ‘cortisol’ in the form of a pill. When exciting or stressful things happen, or the child becomes ill, he or … Continue reading What is congenital adrenal hyperplasia (CAH)? (4+)