“It is the story of Ida Margaret, a patient from Norway, who suffered from Cushing’s Disease for fourteen years before being diagnosed. Diagnosis and Management of Cushing’s disease changed her life. It is a small contribution to raise awareness, and to make the voice of patients heard on the International Cushing Awareness Day on … Continue reading Ida’s testimony – Cushing awareness day 8th April 2019
Quite often, neither healthcare practitioners nor the patients know enough about adrenal gland disorders and their treatment. This can lead to serious health risks. The Quality of Care Standard for Adrenal Disorders is intended to help change this situation. Patients played a leading role in drawing up the document that was officially listed in the … Continue reading Quality of Care Standard supports healthcare practitioners and patients alike
AdrenalNET made accessible the well known (English) AdrenalNET animations in Turkish en Arabic. Usefull when on holiday or for your Turkish or Arabic family and friends: adrenals.eu/tr/video/ (Turkish) adrenals.eu/ar/video/ (Arabic) AdrenalNET and its partners and sponsors like the Dutch Health insurance Zilveren Kruis hope that this information about adrenal disease reaches new target groups and will improve treatment and diagnosis. Call for assistance: Are … Continue reading Adrenals.eu animation made accessible in Arabic en Turkish
During the Medical Conference held on Saturday 25 June 2016, the Dutch Adrenal Society NVACP [Bijniervereniging] honoured two members – Alida Noordzij and Johan G. Beun – by granting them honorary membership. Johan Beun was answering a wide variety of questions from participants at the Conference. He was on form, and was explaining about all … Continue reading Going all out for adrenal patients
BijnierNET: successful campaign in response to patients’ wishes There is specially customised medication available for people with an adrenal disorder who are dependent on hydrocortisone. In the Netherlands, the preparation of this customised medication is the domain of specialised compounding pharmacies. In 2015, BijnierNET (AdrenalNET) held several meetings with a number of the larger compounding … Continue reading Improved medication safety
Adrenals.eu aims to give information on Adrenal Glands related subjects in multiple languages. It is a new initiative of BijnierNET Read more about it.