Abstract Adrenal insufficiency is a life-threatening condition requiring chronic glucocorticoid replacement therapy, as well as stress adaptation to prevent adrenal crises. To increase patients’ self-sustainability, education on how to tackle an adrenal crisis is crucial. All patients should carry the European Emergency Card. Correspondence should be addressed to J G Beun: COOR@BijnierNET.nl Johan G. Beun1, … Continue reading Doctors, teach your adrenal insufficiency patients well: provide them with a European Emergency Card! →
On the occasion of the International Rare Disease Day, a special edition of Endocrine has been published by the European Society of Endocrinology with 21 articles on research results and findings in the field of endocrine diseases. The latter has been done thanks to the European collaboration within ENDO-ERN, the European network for endocrinology. Care … Continue reading Good care = care with a plus for people with adrenal insufficiency →
Friday, 24 April 2020 The Mayor of Nijmegen, Mr H.M.F. Bruls, made a telephone call this morning. He was ringing to pass on some fantastic news to Ad Hermus on behalf of King Willem-Alexander of the Netherlands: namely, that Ad had been appointed an Officer in the Order of Oranje Nassau. This is a splendid … Continue reading Royal honour for Ad Hermus →
Quite often, neither healthcare practitioners nor the patients know enough about adrenal gland disorders and their treatment. This can lead to serious health risks. The Quality of Care Standard for Adrenal Disorders is intended to help change this situation. Patients played a leading role in drawing up the document that was officially listed in the … Continue reading Quality of Care Standard supports healthcare practitioners and patients alike →
AdrenalNET made accessible the well known (English) AdrenalNET animations in Turkish en Arabic. Usefull when on holiday or for your Turkish or Arabic family and friends: adrenals.eu/tr/video/ (Turkish) adrenals.eu/ar/video/ (Arabic) AdrenalNET and its partners and sponsors like the Dutch Health insurance Zilveren Kruis hope that this information about adrenal disease reaches new target groups and will improve treatment and diagnosis. Call for assistance: Are … Continue reading Adrenals.eu animation made accessible in Arabic en Turkish →
During the Medical Conference held on Saturday 25 June 2016, the Dutch Adrenal Society NVACP [Bijniervereniging] honoured two members – Alida Noordzij and Johan G. Beun – by granting them honorary membership. Johan Beun was answering a wide variety of questions from participants at the Conference. He was on form, and was explaining about all … Continue reading Going all out for adrenal patients →
BijnierNET: successful campaign in response to patients’ wishes There is specially customised medication available for people with an adrenal disorder who are dependent on hydrocortisone. In the Netherlands, the preparation of this customised medication is the domain of specialised compounding pharmacies. In 2015, BijnierNET (AdrenalNET) held several meetings with a number of the larger compounding … Continue reading Improved medication safety →
Adrenals.eu aims to give information on Adrenal Glands related subjects in multiple languages. It is a new initiative of BijnierNET Read more about it.