All posts by Jacqueline Neijenhuis

Doctors, teach your adrenal insufficiency patients well: provide them with a European Emergency Card!

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Abstract Adrenal insufficiency is a life-threatening condition requiring chronic glucocorticoid replacement therapy, as well as stress adaptation to prevent adrenal crises. To increase patients’ self-sustainability, education on how to tackle an adrenal crisis is crucial. All patients should carry the European Emergency Card. Correspondence should be addressed to J G Beun: COOR@BijnierNET.nl Johan G. Beun1, … Continue reading Doctors, teach your adrenal insufficiency patients well: provide them with a European Emergency Card! →

Good care = care with a plus for people with adrenal insufficiency

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On the occasion of the International Rare Disease Day, a special edition of Endocrine has been published by the European Society of Endocrinology with 21 articles on research results and findings in the field of endocrine diseases. The latter has been done thanks to the European collaboration within ENDO-ERN, the European network for endocrinology. Care … Continue reading Good care = care with a plus for people with adrenal insufficiency →

Ida’s testimony – Cushing awareness day 8th April 2019

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  “It is the story of Ida Margaret, a patient from Norway, who suffered from Cushing’s Disease  for fourteen years before being diagnosed. Diagnosis and Management of Cushing’s disease changed her life. It is a small contribution to raise awareness, and to make the voice of patients heard on the International Cushing Awareness Day on … Continue reading Ida’s testimony – Cushing awareness day 8th April 2019 →