Although highly prevalent, primary aldosteronism is considered a rare disease. As a result, less than 5% of affected patients are diagnosed and treated. This imbalance represents a major public health issue. Primary aldosteronism not only affects 25% of those with resistant hypertension, it actually accounts for a considerable proportion of what is otherwise believed to be “essential hypertension.”
|Who we are and what we do
The Primary Aldosteronism Foundation is a 501(c)(3) tax-exempt charitable organization committed to creating the paradigm shift that will lead to optimum diagnosis and treatment of primary aldosteronism by raising awareness, fostering research, and providing support to patients and healthcare professionals worldwide.
As the voice of patients, the Foundation raises awareness at all levels of healthcare and in the general public to reach out to undiagnosed patients and foster the inclusion of their experience in care and research processes.
The Foundation promotes accelerated research through funding proportional to the number of affected patients to fill the knowledge gap with regard to aldosterone and the pathogenesis of primary aldosteronism, and to find effective ways of diagnosing and treating the disease at-scale.
Knowledge translation role
Striving to be a key source of information for patients and healthcare professionals, the Foundation promotes, among others:
- Wider dissemination of guidelines,
- Adoption of care pathways and models proven successful at screening for the disease; and
- Formal translation of symptoms into actionable evidence.
Visit us at https://www.primaryaldosteronism.org/ to find specialists and centers of excellence near you, learn about the steps involved in diagnosis, understand what your test results mean, and discover the latest advances in research.
We partner with the Conn’s Syndrome Facebook Group (https://www.facebook.com/groups/652067311558303) to provide patient support and address specific questions.
You can also contact us via email at firstname.lastname@example.org, by phone at +1 (602) 726-0665, or via regular mail at Primary Aldosteronism Foundation, 3533 E Ahwatukee CT, Phoenix, AZ 85044-3418
Want to get involved?
Join the effort to bring primary aldosteronism to the top of the public health agenda by:
- Signing our Open Letter (https://www.primaryaldosteronism.org/open-letter/);
- Volunteering with (https://www.primaryaldosteronism.org/volunteer/) and making a donation to the organization (https://www.primaryaldosteronism.org/ways-to-support-us/); or
- Becoming a partner or sponsor (https://www.primaryaldosteronism.org/partner/).