Category Archives: News

ROTTERDAMMER GOES TO AMSTERDAM

‘The time is ripe to define national care pathways‘ Prof. A.M. Pereira Arias is a specialist in internal medicine and endocrinology and was Professor of Endocrinology at the University of Leiden (the Netherlands) from 2012 until he was appointed Professor of Internal Medicine, with a special focus on endocrinology, at the University of Amsterdam in 2022.In 2012 … Continue reading ROTTERDAMMER GOES TO AMSTERDAM

Doctors, teach your adrenal insufficiency patients well: provide them with a European Emergency Card!

Abstract Adrenal insufficiency is a life-threatening condition requiring chronic glucocorticoid replacement therapy, as well as stress adaptation to prevent adrenal crises. To increase patients’ self-sustainability, education on how to tackle an adrenal crisis is crucial. All patients should carry the European Emergency Card. Correspondence should be addressed to J G Beun: COOR@BijnierNET.nl Johan G. Beun1, … Continue reading Doctors, teach your adrenal insufficiency patients well: provide them with a European Emergency Card!

Good care = care with a plus for people with adrenal insufficiency

On the occasion of the International Rare Disease Day, a special edition of Endocrine has been published by the European Society of Endocrinology with 21 articles on research results and findings in the field of endocrine diseases. The latter has been done thanks to the European collaboration within ENDO-ERN, the European network for endocrinology. Care … Continue reading Good care = care with a plus for people with adrenal insufficiency

Quality of Care Standard supports healthcare practitioners and patients alike

Quite often, neither healthcare practitioners nor the patients know enough about adrenal gland disorders and their treatment. This can lead to serious health risks. The Quality of Care Standard for Adrenal Disorders is intended to help change this situation. Patients played a leading role in drawing up the document that was officially listed in the … Continue reading Quality of Care Standard supports healthcare practitioners and patients alike

Adrenals.eu animation made accessible in Arabic en Turkish

AdrenalNET made accessible the well known (English) AdrenalNET animations   in Turkish en Arabic. Usefull when on holiday or for your Turkish or Arabic family and friends: adrenals.eu/tr/video/ (Turkish) adrenals.eu/ar/video/ (Arabic) AdrenalNET and its partners and sponsors like the Dutch Health insurance Zilveren Kruis hope that this information about adrenal disease reaches new target groups and will improve treatment and diagnosis. Call for assistance: Are … Continue reading Adrenals.eu animation made accessible in Arabic en Turkish

Improved medication safety

BijnierNET: successful campaign in response to patients’ wishes There is specially customised medication available for people with an adrenal disorder who are dependent on hydrocortisone. In the Netherlands, the preparation of this customised medication is the domain of specialised compounding pharmacies. In 2015, BijnierNET (AdrenalNET) held several meetings with a number of the larger compounding … Continue reading Improved medication safety